One of the greatest joys of my life right now is to be apart of a grassroots organization called The Southern Michigan Spina Bifida Connection. Basically we are a Michigan based group, hoping to create awareness and prevention of Spina Bifida in our great lakes state. In the future we also hope to provide financial and emotional support for families affected by Spina Bifida.
On Saturday I had the opportunity to attend a my first official meeting. There were about 17 of us. Some medical staff who work with our kiddos everyday, new parents trying to overcome challenges of day to day life, experienced parents acting in an advisory capacity, and adults with Spina Bifida. It was so encouraging to know that I am not alone in this, and that we are not the only family with questions. You go through a lot having a child with Spina Bifida, and sometimes there is uncertainty. The best way to have peace of mind is to live one day at a time, without thinking about tomorrow. Elly is one of the greatest blessing in my life. I have grown so much as a woman since she was born. I believe I know about my vulnerabilities after having her.
On another note, Southern Michigan Spina Bifida Connection is in the process of planning several different fundraisers right now, but our main event is Rock, Roll, and Bowl which is June 15, 2012 at Drakeshire Lanes in Farmington Hills, MI. This event is a fundraiser to benefit the National Spina Bifida Association apart of their 100 Nights of Parties. It will be an event filled with food, fun, and live entertainment. For ticketing information visit http://rockrollandbowl.eventbrite.com/. We are still looking for corporate, business, and personal sponsors so if you are interested email Morgan at rockrollandbowl@gmail.com or email me directly at najeemat@gmail.com.
To find out more about SMSBC visit our facebook page at https://www.facebook.com/groups/306634406062955/
Najeema
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